Although these appointments are very important, they are also nerve-racking especially when there are concerns. Justin had his neurology visit today, and the last three weeks I have been informed of him possibly having seizures at school. On last Friday I kept him home to closely monitor any seizure activity. Initially being on 2 different seizure meds and now we are down to 1. We are aiming for a positive result of not needing any.

We’ve been seizure free for 2 ½ years, and the notion of them reoccurring is frightening. However, this really shouldn’t be alarming to me because once our children start to gain weight, get taller they outgrow the previous dosage of the med. Justin is now 5’3 and weighing in at 110 pounds; this is explainable if we’re having seizures.

Some of the things his neurologist and I discussed were – increasing seizure med, upcoming MRI,  very concerned with his high blood pressure as well as putting a method in place to assist with a good night’s rest. Being visually impaired and not being able to distinguish day and night plays a great part in not receiving proper rest. Justin not getting adequate sleep may be causing the seizures if they are occurring. Trying an all natural tea and lavender bath oil could help reduce insomnia. The next couple of weeks, I will be intensely monitoring Justin for seizures.  

About The Author

God fearing, loving mother to an awesome young man. Enjoying what I do! Although I'm not the greatest teacher, however raising a child with special needs has given me more degrees than any college university you could think of.

2 Responses

  1. CT

    Jc is a real trooper you should be so proud of him. It appears everyday he grows and gets better with dealing with his medical condition and that’s a testament to him and the great job his mother does.

    Reply
    • Mary

      Ct thanks! It’s always good to hear encouraging words from my readers. And you’re right he is a trooper! My trooper

      Reply

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