Hello everyone! I thought I would share this very necessary blog post about what I’ve learned and witnessed with Justin’s sleep habits. During his last neurology visit, his doctor asked the number one question that we as parents with special needs children find as a unique challenge. “Does Justin sleep well?” After stressing we’ve been sleep deprived for 12 years, she recommended a lavender bath. At this point anything is worth a try! Justin would sleep random hours during the day, and up all night. Thank God I’m a stay-at-home mom and could sleep whenever he was asleep. Justin doesn’t distinguish day from night (being totally blind) and his body does not produce melatonin.

Seizures are very sensitive to sleep patterns and not getting proper rest can trigger a seizure. I always noticed Justin’s seizures would occur after a nap. Never after waking from a good night’s rest. Studies show that 8-12 hours of rest is required for a typical developed child; however Justin tends to do well with just 5 hours of sleep. To him those 5 hours will last about 15 hours awake, no problem. Having a team set in place; such as family to help you with exhaustion, would be a great idea.

Take it from a mother who knows, this is no walk in the park and after a while your body will tell off on you. Although he may stay up all night, and doesn’t fall asleep until morning, I still only allow him a few hours of rest. I know, seems mean huh? 🙁 During summer break we manage to get off routine and then we have to detox. Rest is very significant!

Routine, Routine, Routine! I can’t stress this enough.

I would say school does help, because stimulation during school hours influences a child’s ability to sleep at night. A tired student has difficulties learning in class. I was once given the suggestion of melatonin by one of his teachers. After discussing this with his endocrinologist, he advised me not to use due to Justin’s low blood sugar care. As of now with having much success, the lavender bath has worked magic if not the lavender bath we use the drops. This is one drop under each foot. At this point I’ll eat a lavender sandwich if they made them. LOL I would advise you to try it. Good Luck 🙂

About The Author

God fearing, loving mother to an awesome young man. Enjoying what I do! Although I’m not the greatest teacher, however raising a child with special needs has given me more degrees than any college university you could think of.

4 Responses

  1. Aurvarnette

    Gonna try this for myself…Kiss my handsome Justin for me..And you have an awesome day….

    Reply
    • Mary

      He’s a strong young man! As well as Justin. Nothing can keep them down long lol 🙂 Thanks for commenting!

      Reply

Would love to hear from!